Page tree

Versions Compared

Key

  • This line was added.
  • This line was removed.
  • Formatting was changed.

...

In order to protect Project participants' data, 100,000 Genomes Project data can only be accessed through a secure Research Environment. To access the data for research, you must be a member of the Genomics England Clinical Interpretation Partnership (GeCIP), the research community set up to analyse the Project data. You can apply to join the GeCIP on our website.

To GeCIP members do not get access to Project data immediately. To be eligible for data access, you must meet these requirements:

  1. Your application to a GeCIP domain has been accepted (i.e. you are a GeCIP member).
  2. Your institution has signed the GeCIP Participation Agreement, which outlines the key principles that members of each institution must adhere to, including our Intellectual Property and Publication Policy. As of 2019, your institution must have signed the agreement before you can apply to GeCIP. See if your institution has signed here.
  3. Your institution has verified you are affiliated with that institution. We contact institutions regularly to ask them to review their current list of affiliated GeCIP members, Each institution has a membership secretary who is in charge of verifying the institutions of new GeCIP members, and they are contacted when there are new members to review, so no action is required on your part. This verification step is necessary to make sure we know who is accessing the data, in line with the consent that Project participants have given.

Your domain

...

must also have submitted a Detailed Research Plan and had it

...

approved by the Genomics England Access Review Committee.

...

All domains available on the GeCIP application form meet this requirement.

...

Certain other individuals have access to some of the Project data. For example, students on the MSc Genomic Medicine have in the past been given access to a small subset of data for teaching purposes, approved individuals from certain commercial companies have access to some data for research, and individuals involved in the pilot phase of the programme have access to pilot data.

...

After you apply to join GeCIP, the following steps need to take place:

  • Your application is sent to the The relevant domain lead(s) are notified of your application.
  • Your application is reviewed by the domain lead(s): this can take up to 10 working days).
  • Your details are sent to your institution so they can verify your affiliation: this can be immediate (if the institution has agreed to "auto-verify" those with affiliated email addresses), but can often take weeks or even months. We cannot guarantee a timeframe for these step to be completed because it depends on your institution.
  • Your details are sent for account creation: this occurs in batches every 10 working days, and accounts may be created a few days after details are sent.

...